Northern Virginia Prenatal
& Perinatal Loss Resources

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• Perinatal hospice: A gift of time - the model for this web site
• String of Pearls, Supports families seeking perinatal hospice
• Human Milk Banking Association of North America - (FAQs: p. 4) Education and advocacy about the value of human donor milk banking, including the therapeutic value for some bereaved mothers.

Local

• Kristen Anderson Perinatal Hospice Program - Fairfax, Virginia

Perinatal Bereavement

• A Place to Remember
• Babyloss.com (U.K.)
• Brief Encounters
• Born Still but Still Born
• Center for Loss in Multiple Birth, Inc.
• The Compassionate Friends
• Gentle Birth (loss resources from a midwifery perspective)
• Hygeia Foundation & Institute for Perinatal Loss and Bereavement
• Infants Remembered in Silence
• M.E.N.D. (Mommies Enduring Neonatal Death)
• MISS Foundation
• Pregnancy.org: Dealing with Childbearing Complications
• Pregnancy and Infant Loss.org
• Pregnancy Loss and Infant Death Alliance
• SANDS Stillbirth and Neonatal Death Society (Australia)
• SANDS Stillbirth and Neonatal Death Society (England)
• SHARE Pregnancy and Infant Loss Support
• StorkNet: Pregnancy/Infant Loss

Web Sites Related to Continuing a Pregnancy

• Antenatal Results and Choices: Continuing a Pregnancy (U.K.)
• Be Not Afraid
• Carrying to Term Pages
• Carrying to Term discussion forum sponsored by Now I Lay Me Down to Sleep
• HealthTalkOnline patient experiences about continuing a pregnancy, sponsored by the University of Oxford, England
• Living with Trisomy 13 perinatal hospice information
• MISS Foundation online support forums
• "Fatal Diagnoses During the Prenatal Period" and "Pediatric Hospice Support" Mother's Heart Ministry
• Prenatal Partners for Life
• Rowan Tree Foundation
• Waiting with Love

Information about Continuing Pregnancies with Specific Conditions

• Anencephaly Information (also in German, French, Spanish, Dutch, Portuguese and Italian)
• MUMS National Parent-to-Parent Support Network
• Poor Prenatal Diagnosis.com
• Potter's Syndrome.org
• S.O.F.T. Support Organization for Trisomy 18, 13, and related disorders (Trisomy 13/Patau Syndrome, Trisomy 18/Edwards Syndrome, triploidy, and others)
• Trisomy 13 Support
• Trisomy 18 Support (See also the video "99 Balloons")

Perinatal Bereavement Photography and Keepsakes

• The Comfort Company
• Heartprints Photo Retouching - digital photo retouching service for families who have lost a baby through stillbirth or prematurity
• Little Life Handprint Pins
• My Forever Child: Child Loss Keepsakes
• Now I Lay Me Down To Sleep (national network of no-cost infant bereavement photographers) - Find a Local Photographer
• Timeless Traditions: Tear Bottle Keepsakes

End-of-life decisions

• Embracing Our Dying

Sources for Purchasing Books and Other Materials

• A Place to Remember
• Centering Corporation
• Fulcrum Publishing
• Loyola Press
• RTS Bereavement Services, including the patient brochure "Waiting for Birth and Death: Knowing Your Baby Will Not Survive"

Other Resources

• CaringBridge Free Web pages to keep family and friends informed about your baby.
• How to Obtain a Certificate of Birth Resulting in Stillbirth
• Cherokee Child Caskets
• Faith's Lodge in Webster, Wisconsin. A unique retreat for families who currently have a child with a serious illness or have suffered the recent loss of a child.
• The Green Funeral Site - Information on a soothing alternative to traditional embalming and burials practices.
• Heaven’s Gain - small baby caskets and burial products
• Olivia Raine Foundation Financial assistance for funeral-related expenses for infants
• Trappist Caskets - Monks from New Melleray Abbey in Iowa build infant-sized caskets out of sustainable red oak harvested from the abbey's forest.